One story changed my life and led me into research

“It’s like having the worst urine infection, but all the time. I can’t work, I can’t sleep, my relationship is suffering because its too painful to have sex so I don’t want him near me, and I feel ratty all the time. I’m not being a good mum, I shout at the kids. I’ve had enough.”

I first came across Bladder Pain Syndrome (previously known as Interstitial Cystitis) 10 years ago when one woman’s story really hit home. A young mum who’d had to stop working as her trips to the toilet every 15 minutes were annoying her boss, and her colleagues made jokes about her bladder. It was initially something she handled well, but as she tried to hold off from going to the toilet her symptoms worsened and she retreated inside herself. Medications didn’t help the pain and quickly her world became smaller and smaller.

Her bladder was ruling her life and she was miserable. She was at the end of her tether and I was her last hope.


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